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Post  Sharon on Tue Nov 04, 2008 11:12 pm

Hi
I'm a mum of a son (Joe) who has been recently diagnosed with type 1, he is really having a hard time dealing with it ( he is 20, by the way), he doesnt eat properly or test his blood, has had problems injecting . I feel there is no help sorting these sorts of problems out, he really needs to speak to someone who knows what its like, preferably in his age group. I'm hoping he will eventually write on here.
Sharon

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Re: Help

Post  Clare on Tue Nov 04, 2008 11:24 pm

Hi Sharon, welcome to the board.

I'm sorry your son's having such a hard time of it. It must be very stressfull for you too. I hope that we'll be able to help you both.

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Re: Help

Post  Imogen on Wed Nov 05, 2008 7:18 am

Hi Sharon - welcome to the board Very Happy I hope with can help you and Joe - we all know how it feels to cope with the diabetes - and there are some young people on here and also some other mothers of diabetics for you to chat to.

My son is here now (nearly 5) and he wants to choose some emoticons for Joe...

flower cherry albino Sleep santa alien pig afro elephant cat

Hmm... not sure that'll help, but it's a first step! lol!

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Help

Post  Junglegirl on Wed Nov 05, 2008 12:40 pm

Hi Sharon, what a nightmare for you, I hope Joe will pop on here and have a nosey round, he doesn't have to "do" anything on here, but who knows maybe he will start delving into the diabetic tales! I'm a type 1 was diagnosed at 14 and had a dreadful time dealing with it. I never tested, I often missed injections and had loads of "injection" problems and to be honest - thought what the hell. I'm still here, it did take me 5 years to come to terms with what had happened to me - going from being a healthy carefree kid, to a weighed down "diabetic" person was just awful.

No words of comfort but I drove my mum mad, she'd constantly worry and I'd constantly lash out at her, be prepared, we love you, but we have no-one else to lash out at, mum's are easy targets, they love us no matter what.

I'm 48 now, the lack of emotional support and clinical help for the ups and downs of adjustment to diagnosis is so sadly lacking and no doubt Joe will keep you at your wits end - but don't ever think you are alone, you're not, we're here - that's a start. If you have any questions, maybe we can help and we are a great shoulder to cry on and vent at - I've done the venting loads of times - the moderators are spectacularly great.

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Re: Help

Post  Clare on Wed Nov 05, 2008 1:06 pm

I'm here to be shouted at Shocked
I can't help with much of the technical stuff, but I've got big, tissue covered shoulders and am always willing to listen Smile

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Thank you

Post  Sharon on Wed Nov 05, 2008 8:24 pm

Dear All
I'm so glad to hear from you all, Joe even read the messages and even smiled at the five year olds emotions, he wouldnt write, but did tell me to send one back to him Smile

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Re: Help

Post  Imogen on Wed Nov 05, 2008 8:52 pm

Sharon and Joe
No problem, glad to make you smile! Josh is now in bed dispite the fireworks outside!

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Re: Help

Post  beaniequeenie on Thu Nov 06, 2008 10:09 am

Hi Sharon & Joe,

Just thought I'd let you know that I know exactly what Joe is going through. I'm 23 and was diagnosed type-1 just over a year ago. It's a lot to deal with at first.

Although I have generally been quite good at taking my insulin, when I was first diagnosed I used to take lower doses than I was meant to, skip meals so I didn't have to take it (then hypo, oh joy Rolling Eyes ) and generally feel really down. I put on a lot of weight, which was another reason for cutting back on insulin and I felt like no-one (medically) really cared, and dispite the best efforts of my family they just couldn't understand. I was always telling my Dr's that I was going to stop taking the insulin, and I didn't care about what happened after that.

Honestly, it is all part of getting used to the situation and coming to terms with it. I know that it must be hard for both of you. I think in the end my mum just decided to let me get on with it (most of the time), and I went off and did research in to type-1 and side effects, how to control it better through exercise. I always went to see the nurses but mostly didn't care for what they were saying. I started carb counting on my own, and that allowed me to control how much insulin I wanted to take, so I didn't need to make myself ill with high sugar levels.

Joe, Maybe you should ask your nurse about the DAFNE/ DIANA course? (I cant remember which one. One is for type 1 the other is type 2) Then you'll learn a bit more about diabetes, eating, exercise, drinking, as well as being in a group of people who are going through, or have been through the same things as you. You'll also see problems that you don't have and the ways that people do things (some are very wrong, like not changing needles for days! Shocked ) then hopefully you should feel more positive about things. If you are really down about it all (which is fairly common), ask to speak to someone, sometimes just ranting makes you feel better. (or send me an e-mail if you just want to rant to me. I don't mind.)

Well, one year later and my HBa1c is down from 11.2 to 8.4. I still have a way to go, but I'm quite proud (lol). Had a hick a few month back where it went up a bit, but its back down now. (These things will happen.)
I still have bad sugar days, and good days. I also have days where I eat everything I shouldn't, just not too often! And at Christmas I will be eating cake & chocolate, and drinking because I have the insulin to allow me to do that. (I don't recommend this day-to-day thing of course!) I also run 10k races regularly.

Diabetes seems bad a first, but really it's ok once you get the hang of it. It doesn't need to stop you doing anything.

Sorry, this is a bit long. But the main point is that there are other people here going through the same things as the two of you, and you will both be fine, just be strong.

Beanie
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Re - Help

Post  ekcogolf on Thu Nov 06, 2008 4:39 pm

Hi Sharon ,
I'm sure Joe will get to grips with his diabetes in time , I know only too well how it is getting to grips with all the adjustments you have to make , I was completely useless at taking my bloods to begin with , but for some reason was Ok with injecting ( not much cop when you don't know how much insulin you should be taking ! )
At the age of 20 you want to be out doing what everyone else is , and there really is no reason why he shouldn't be . I'm sure if he talks to his diabetic nurses they'll be able to point him in the right direction , there are also a lot more insulin regimes nowadays that can give you a lot more flexibility than there once was , its always worth asking .
Craig
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Re: Help

Post  caroline wilson on Fri Nov 21, 2008 5:27 pm

Hi Sharon, not sure if I can help much as it's me who's the type 2 here. However I can understand the worry of a child not eating. We adopted a little boy (he was 4 in September) and he will not eat if he can help it. We have tried all kinds of measures to get him to eat. As he is a big fan of milk we add a vitimin supplement to his milk.

Not sure how to help you with your 20 year old, but we are here to listen if you need to talk or a shoulder to cry on. My grown up son is 22 and can be a stroppy sod sometimes. To say don't worry is easy, but to not worry is hard. No matter how big they get we still worry...

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